Every ceiling, when reached, becomes a floor, upon which one walks as a matter of course and prescriptive right. ~Aldous Huxley
Fundraising Tip
Start sending thank you letters to your donors right away. Nothing can replace a thoughful note from you, expressing your gratitude.
TNT In The News
Examiner
Visitors Per Month – 7,040,174
Exclusive Interview with Project Runway’s Carol Hannah Whitfield
http://www.examiner.com/x-21288-Center-City-Style-Examiner~y2009m12d18-Exclusive-Interview-with-Project-Runways-Carol-Hannah-Whitfield
By Michelle Conron
Browsing through the ready to wear and wedding collection designed by Project Runway’s Carol Hannah Whitfield, it is obvious that she is destined to be a designer that will deliver amazing looks season after season. We watched her evolve on Project Runway, (shop for one-of-a-kinds from the season in her Etsy shop) and her debut collections are getting rave reviews. Her use of figure flattering silhouettes that are as edgy as they are sophisticated is unlike most designers today; she has an eye for balance and pushing boundaries at the same time. As the new cast of Project Runway’s upcoming season is being unveiled, it’s great to see what our favorite designers of the past are up to. The uber-talented Whitfield is settled in her new studio space with fellow Project Runway alumni Logan and Epperson, and graciously allowed me to ask her some questions about her daily life and what goes on behind closed doors. In the exclusive interview below, Carol Hannah opens up and dishes out her fashion faux-pas of the past, her style weaknesses, and much more!
Q: Personal style... What lifestyle lessons do you favor that maintain that your inside is as good looking as your outside?A: Take care of your body and you will feel twelve thousand times more confident. The way you wear things is just as important as what you wear, if not more so! I love to run! It also is a great way to burn off stress. I also think it's important to make sure you contribute to something bigger than yourself, especially when working in this industry. I just started fundraising for the Leukemia and Lymphoma Society for a marathon I'm running in April. It's always been a goal that my line and my company transcend fashion, and the LLS seemed like a good fit because Leukemia has directly affected my family. You can donate here. Also, fashion and style is about fun and expression, not being judgmental towards others. Don't take get too wrapped up in it - just have fun.
Mission Moment
Melissa
Living with Hodgkin Lymphoma for 2 years, 11 months
Age: 25
I found out I was pregnant in December 2004. We were so excited and couldn't wait to meet our baby in August 2005. Then, in February 2005, a huge lump appeared on my neck. I went to see my family doctor and he didn't seem too concerned about it and made an appointment for me to see a plastic surgeon. A couple of weeks later, I met with the plastic surgeon and he seemed more concerned. He said he wanted to know a little bit more about what he was removing so he sent me to an Ear, Nose, and Throat doctor. I went to see the ENT on March 21, 2005. I was 19 weeks pregnant at the time. The doctor felt the lump on my neck and under my arms. He basically said, "It's either a virus or it's Hodgkin's and I don't think it's a virus." I had tests done a couple of days later that confirmed that it was Hodgkin's. I chose to visit MD Anderson in Houston where they attempted to stage me safely and not to interfere with the baby at all. I was staged at IIB. I came home and carried on a normal pregnancy. Because my breathing was getting harder, we decided to induce at 32 weeks. He wasn't ready and therefore the induction failed. We tried again at 34 but he still wouldn't come. Finally, on July 21, 2005, 4 months to the day I was diagnosed, Hunter came into the world. He was perfectly healthy and beautiful.
2 weeks after giving birth, I had a CT and PET scan that revealed the cancer to be stage IIIB. I had 6 months of ABVD. This ended in January and then I was retested. None of the tests were coming out clear but when they did, I only required 3 weeks of radiation. I have been cancer-free since July 11, 2006. It was the hardest thing that I have ever done, but it is a journey that I will never forget. My precious son and I will always have a special connection. He was what I needed to make it through this battle and I can't wait to be able to share that with him someday. We are fighters, we are survivors, we are strong.
Tuesday, December 29, 2009
Monday, December 21, 2009
Winter Season - Week 18
Happy Holidays from the Staff at The Leukemia & Lymphoma Society. We thank you for your ongoing dedication to our mission and wish you a safe holiday season!!
I discovered it wasn't a matter of physical strength, but a matter of psychological strength. The conquest lay within my own mind to penetrate those barriers of self-imposed limitations and get through to good stuff- the stuff called potential, 90 percent of which we rarely use. ~Sharon Wood, First North American Woman to Climb Mt. Everest
Fundraising Tip
Send a press release to your contacts in the media regarding your training and your upcoming event. You never know, you might get some press!
Frequently Asked Questions
WHY IS THERE A FUNDRAISING DEADLINE?
Team In Training is first and foremost a fundraising program. The primary goal is to raise funds for leukemia research. In light of this objective, we take your commitment to raise the fundraising minimum seriously. We want all Team In Training participants to be successful in raising at least the minimum, and we have structured the program to provide as much support as possible. At the final deadline date, two weeks before your event, if you have not reached the fundraising minimum, we will place the remaining amount on your credit card. In the event that your credit card must be charged, you will have an additional month to fundraise (30 days after your event). The Society will reimburse you any additional funds collected up to the amount that you personally contributed. The Leukemia & Lymphoma Society has a national “no deals” policy. The preceding procedures are designed with the intent of maintaining the integrity of the TNT program, and to be true to our mission of finding a cure for leukemia.
Mission Moment
Amy Griffin
Gradyzebulon, NC
United States
Living with CML for 1 year, 5 months
Age: 31
I'm 30 years old and have Chronic Myelogenous Leukemia (CML). Most days I'm scared to death and try to just make it through the day. I just started working and feel a little better.
I discovered it wasn't a matter of physical strength, but a matter of psychological strength. The conquest lay within my own mind to penetrate those barriers of self-imposed limitations and get through to good stuff- the stuff called potential, 90 percent of which we rarely use. ~Sharon Wood, First North American Woman to Climb Mt. Everest
Fundraising Tip
Send a press release to your contacts in the media regarding your training and your upcoming event. You never know, you might get some press!
Frequently Asked Questions
WHY IS THERE A FUNDRAISING DEADLINE?
Team In Training is first and foremost a fundraising program. The primary goal is to raise funds for leukemia research. In light of this objective, we take your commitment to raise the fundraising minimum seriously. We want all Team In Training participants to be successful in raising at least the minimum, and we have structured the program to provide as much support as possible. At the final deadline date, two weeks before your event, if you have not reached the fundraising minimum, we will place the remaining amount on your credit card. In the event that your credit card must be charged, you will have an additional month to fundraise (30 days after your event). The Society will reimburse you any additional funds collected up to the amount that you personally contributed. The Leukemia & Lymphoma Society has a national “no deals” policy. The preceding procedures are designed with the intent of maintaining the integrity of the TNT program, and to be true to our mission of finding a cure for leukemia.
Mission Moment
Amy Griffin
Gradyzebulon, NC
United States
Living with CML for 1 year, 5 months
Age: 31
I'm 30 years old and have Chronic Myelogenous Leukemia (CML). Most days I'm scared to death and try to just make it through the day. I just started working and feel a little better.
Monday, December 14, 2009
Winter Season - Week 17
Happy are those who dream dreams and are ready to pay the price to make them come true. ~ Leon J. Suenes
Fundraising Tip
Email your monthly update reminding others to donate. This is a great way to keep people up to date with your training and fundraising progress. It's also a great time to update your potential donors on your honored patients status.
Frequently Asked Questions
WHY IS THERE A FUNDRAISING DEADLINE?
Team In Training is first and foremost a fundraising program. The primary goal is to raise funds for blood cancer research. In light of this objective, we take your commitment to raise the fundraising minimum seriously. We want all Team In Training participants to be successful in raising at least the minimum, and we have structured the program to provide as much support as possible. At the final deadline date, two weeks before your event, if you have not reached the fundraising minimum, we will place the remaining amount on your credit card. In the event that your credit card must be charged, you will have an additional month to fundraise (30 days after your event). The Society will reimburse you any additional funds collected up to the amount that you personally contributed. The Leukemia & Lymphoma Society has a national “no deals” policy. The preceding procedures are designed with the intent of maintaining the integrity of the TNT program, and to be true to our mission of finding a cure for leukemia.
TNT In The News
Charlotte Observer
She has Sprinted Past Adversity
http://www.charlotteobserver.com/breaking/story/1092353.html
By Joe Marusak
At 7 a.m. on a recent Saturday, Gatewood Campbell stretched outside the Birkdale cinemas with other members of her running team. Soon she was off on a 10-mile practice run through Lake Norman neighborhoods. Four years ago, Campbell considered herself overweight. Run three times a week? Not in this working mom's day planner. Then she was diagnosed with a form of epilepsy that caused seizures. Twice she lost consciousness and fell. Always the organizer, Campbell suddenly had trouble remembering the simplest things. "I'd go to make coffee and get the water in, but forget to put the grounds in," she said. That recipe she made so often? She now had to write the ingredients down. Campbell had to leave her job with a Huntersville nonprofit, but the condition opened a new life to her, she said. Campbell, 36 and a mother of two, has since raised about $10,000 for the Leukemia & Lymphoma Society by running a half- and full marathon through the organization's Team-in-Training national fundraising effort.
Mission Moment
Abby
TX
United States
Living with ALL for 1 year, 9 months
Age: 5
It will be difficult to forget May 9, 2006, yet we have such a hard time remembering the details of that day. That morning, we took our 3 year old daughter in to our family doctor for the second time in 5 days. The symptoms by this time were unmistakable to her doctor: fever, leg pain, swollen lymph nodes and incredible bruises. We were sent for blood work at our local hospital, and were given the results back at the doctor's office...Abby has leukemia. We were immediately sent from our small town to a nearby city, to a wonderful pediatric oncologist. After an initial exam at his office, we checked in to the Children's Hospital next door, which would become our home for the next 29 days.
During that first stay, Abby was found to have Acute Lymphocytic Leukemia (ALL). At some point later, testing showed Abby also has the Philadelphia Chromosome, which makes treatment very difficult.
Now, after 5 months in and out of the hospital, and many medicines later, we are finally feeling like we can breathe again. We are adjusting to life with a child on chemo (and sometimes steroids!), we have cried at the loss of her beautiful blonde hair, and we have rejoiced each time a FISH test comes back clear. It is still a long road...6 more months of high and intermediate dose chemo, then 2+ years on maintenance. Our faith in God has gotten us this far, and we know that He will sustain and strengthen us until the day Abby is healed.
Fundraising Tip
Email your monthly update reminding others to donate. This is a great way to keep people up to date with your training and fundraising progress. It's also a great time to update your potential donors on your honored patients status.
Frequently Asked Questions
WHY IS THERE A FUNDRAISING DEADLINE?
Team In Training is first and foremost a fundraising program. The primary goal is to raise funds for blood cancer research. In light of this objective, we take your commitment to raise the fundraising minimum seriously. We want all Team In Training participants to be successful in raising at least the minimum, and we have structured the program to provide as much support as possible. At the final deadline date, two weeks before your event, if you have not reached the fundraising minimum, we will place the remaining amount on your credit card. In the event that your credit card must be charged, you will have an additional month to fundraise (30 days after your event). The Society will reimburse you any additional funds collected up to the amount that you personally contributed. The Leukemia & Lymphoma Society has a national “no deals” policy. The preceding procedures are designed with the intent of maintaining the integrity of the TNT program, and to be true to our mission of finding a cure for leukemia.
TNT In The News
Charlotte Observer
She has Sprinted Past Adversity
http://www.charlotteobserver.com/breaking/story/1092353.html
By Joe Marusak
At 7 a.m. on a recent Saturday, Gatewood Campbell stretched outside the Birkdale cinemas with other members of her running team. Soon she was off on a 10-mile practice run through Lake Norman neighborhoods. Four years ago, Campbell considered herself overweight. Run three times a week? Not in this working mom's day planner. Then she was diagnosed with a form of epilepsy that caused seizures. Twice she lost consciousness and fell. Always the organizer, Campbell suddenly had trouble remembering the simplest things. "I'd go to make coffee and get the water in, but forget to put the grounds in," she said. That recipe she made so often? She now had to write the ingredients down. Campbell had to leave her job with a Huntersville nonprofit, but the condition opened a new life to her, she said. Campbell, 36 and a mother of two, has since raised about $10,000 for the Leukemia & Lymphoma Society by running a half- and full marathon through the organization's Team-in-Training national fundraising effort.
Mission Moment
Abby
TX
United States
Living with ALL for 1 year, 9 months
Age: 5
It will be difficult to forget May 9, 2006, yet we have such a hard time remembering the details of that day. That morning, we took our 3 year old daughter in to our family doctor for the second time in 5 days. The symptoms by this time were unmistakable to her doctor: fever, leg pain, swollen lymph nodes and incredible bruises. We were sent for blood work at our local hospital, and were given the results back at the doctor's office...Abby has leukemia. We were immediately sent from our small town to a nearby city, to a wonderful pediatric oncologist. After an initial exam at his office, we checked in to the Children's Hospital next door, which would become our home for the next 29 days.
During that first stay, Abby was found to have Acute Lymphocytic Leukemia (ALL). At some point later, testing showed Abby also has the Philadelphia Chromosome, which makes treatment very difficult.
Now, after 5 months in and out of the hospital, and many medicines later, we are finally feeling like we can breathe again. We are adjusting to life with a child on chemo (and sometimes steroids!), we have cried at the loss of her beautiful blonde hair, and we have rejoiced each time a FISH test comes back clear. It is still a long road...6 more months of high and intermediate dose chemo, then 2+ years on maintenance. Our faith in God has gotten us this far, and we know that He will sustain and strengthen us until the day Abby is healed.
Monday, November 30, 2009
Winter Season - Week 15
Ryleigh Thomason
It is with sadness in our hearts when we tell you that Ryleigh passed away this morning. All of us here in the LLS office are completely blindsided and overwhelmed with grief for her family.
Please keep fighting.
Monday, November 23, 2009
Winter Season - Week 14
"A journey of a thousand miles begins with one step." ~ Lao-Tzu
Fundraising Tip:
Gimme 5. This is a great way to get larger quantities of people to donate just a little and spread the word to all of their friends to donate. This is what your email will say:
Gimme 5 minutes of your time – Go to my website at (put your website address here) and read about what I'm is doing. Gimme $5 (or $10) – Just donate online. Five dollars for a great cause – and hey if you want to donate more, fantastic!! Gimme 5 friends – Send this to five friends and help spread the word! 5 is the age of McKynna, our honored patient. I am running for her. She was diagnosed 2 years ago and is still in treatment. Every 5 minutes someone new is diagnosed with a blood cancer – money for research is desperately needed – so please donate now.
Training Tip:
The long run is the most important component of marathon training because it teaches the body to both mentally and physically tackle the challenges presented in completing the 26.2-mile event. Physiologically, the body must learn to tap into and utilize energy reserves from fat storage sites after the glycogen (fuel stores in the muscles, converted over from carbohydrate food sources) have been depleted. Through long run training, the capacity to store more glycogen within the muscles increases. An increase in glycogen stores translates into the ability to maintain one's pace during the marathon and delay the onset of fatigue. Conversely, trouble is on the horizon when you run out of glycogen, as your pace will significantly decrease. One must also be accustomed to running for very long periods of time, and the mental toughness that develops from completing long training runs pays off handsome dividends during the actual marathon. The long run also provides an excellent opportunity to experiment with a variety of issues and concerns (e.g., shoes, nutrition, pacing, etc.). Above all, marathon training schedules must be designed so that runners are adequately rested prior to undertaking their long runs. One who completes at least two long runs of 20 miles or longer prior to his or her marathon will no doubt reduce the possibility of visiting the dreaded "wall" (the point in time when glycogen stores within the muscles have been depleted and as a result, the runner's pace slows considerably, oftentimes to a walk).
Frequently Asked Question:
WHO LOVES THIER MENTORS?
Your Mentor is a special Team Member who has successfully completed his or her training and fundraising aspects of the program, and loves TNT so much that they just can’t stand to leave it! They have been in contact with you on a regular basis. Mentors are one of your best resources. They have “been in your shoes” and have great advice. Mentors share fundraising ideas and have often trained together with you. They help us to ensure that you have a positive, enjoyable Team In Training experience. PLEASE email me at kari.may@lls.org to let me know what your mentor has meant to you this season!
TNT In The News:
The Boston Globe
www.boston.com
Circulation – 264,105
Visitors Per Month – 1,200,000
Pay it Forward
http://www.boston.com/news/local/articles/2009/11/15/pay_it_forward/
By Cindy Cantrell
Television news anchor Kevin Walsh was living in Honolulu in the spring of 1996 when he covered the stories of two local leukemia patients - a 46-year-old man and 2-year-old girl - searching for life-saving bone marrow matches. Walsh, who signed up as a potential donor at one of their registration drives, says he was shocked when he received a call four years later that he was a match for a 16-year-old boy in St. Louis. Sadly, Walsh learned six months after his donation that the teenager had died from an infection just three weeks following the transplant. To honor the lives of the boy and other leukemia patients, Walsh ran in the Honolulu Marathon in December 2000 as a member of the Leukemia & Lymphoma Society’s Team in Training. Walsh, who now lives in Wellesley, has written a book, “The Marrow in Me,’’ about his experience as a donor and the series of coincidences that brought him to that day. “My greatest hope is that someone will be inspired to register as a potential donor and turn up as a match for someone somewhere in the world,’’ he said. “I didn’t get my perfect ending, so I want someone else to have it.’’
Mission Moment:
In Memory Of Firouz
CA United States
male
Lived with AML for 3 months
My father was diagnosed with AML in July at the age of 66. He underwent chemo, achieved remission, but relapsed within 3 weeks. We unsuccessfully tried another treatment, and my father passed away about 3 months after diagnosis. We live our lives expecting tomorrow, without truly appreciating today. If there's any good that came out of my dad's illness, it's that we had a chance to appreciate today as a family, knowing that we may not have tomorrow. My dad left this life knowing how loved he truly was and we were reminded of how much my dad loves us. This was my father's final gift to his family and friends. He is greatly missed!
Fundraising Tip:
Gimme 5. This is a great way to get larger quantities of people to donate just a little and spread the word to all of their friends to donate. This is what your email will say:
Gimme 5 minutes of your time – Go to my website at (put your website address here) and read about what I'm is doing. Gimme $5 (or $10) – Just donate online. Five dollars for a great cause – and hey if you want to donate more, fantastic!! Gimme 5 friends – Send this to five friends and help spread the word! 5 is the age of McKynna, our honored patient. I am running for her. She was diagnosed 2 years ago and is still in treatment. Every 5 minutes someone new is diagnosed with a blood cancer – money for research is desperately needed – so please donate now.
Training Tip:
The long run is the most important component of marathon training because it teaches the body to both mentally and physically tackle the challenges presented in completing the 26.2-mile event. Physiologically, the body must learn to tap into and utilize energy reserves from fat storage sites after the glycogen (fuel stores in the muscles, converted over from carbohydrate food sources) have been depleted. Through long run training, the capacity to store more glycogen within the muscles increases. An increase in glycogen stores translates into the ability to maintain one's pace during the marathon and delay the onset of fatigue. Conversely, trouble is on the horizon when you run out of glycogen, as your pace will significantly decrease. One must also be accustomed to running for very long periods of time, and the mental toughness that develops from completing long training runs pays off handsome dividends during the actual marathon. The long run also provides an excellent opportunity to experiment with a variety of issues and concerns (e.g., shoes, nutrition, pacing, etc.). Above all, marathon training schedules must be designed so that runners are adequately rested prior to undertaking their long runs. One who completes at least two long runs of 20 miles or longer prior to his or her marathon will no doubt reduce the possibility of visiting the dreaded "wall" (the point in time when glycogen stores within the muscles have been depleted and as a result, the runner's pace slows considerably, oftentimes to a walk).
Frequently Asked Question:
WHO LOVES THIER MENTORS?
Your Mentor is a special Team Member who has successfully completed his or her training and fundraising aspects of the program, and loves TNT so much that they just can’t stand to leave it! They have been in contact with you on a regular basis. Mentors are one of your best resources. They have “been in your shoes” and have great advice. Mentors share fundraising ideas and have often trained together with you. They help us to ensure that you have a positive, enjoyable Team In Training experience. PLEASE email me at kari.may@lls.org to let me know what your mentor has meant to you this season!
TNT In The News:
The Boston Globe
www.boston.com
Circulation – 264,105
Visitors Per Month – 1,200,000
Pay it Forward
http://www.boston.com/news/local/articles/2009/11/15/pay_it_forward/
By Cindy Cantrell
Television news anchor Kevin Walsh was living in Honolulu in the spring of 1996 when he covered the stories of two local leukemia patients - a 46-year-old man and 2-year-old girl - searching for life-saving bone marrow matches. Walsh, who signed up as a potential donor at one of their registration drives, says he was shocked when he received a call four years later that he was a match for a 16-year-old boy in St. Louis. Sadly, Walsh learned six months after his donation that the teenager had died from an infection just three weeks following the transplant. To honor the lives of the boy and other leukemia patients, Walsh ran in the Honolulu Marathon in December 2000 as a member of the Leukemia & Lymphoma Society’s Team in Training. Walsh, who now lives in Wellesley, has written a book, “The Marrow in Me,’’ about his experience as a donor and the series of coincidences that brought him to that day. “My greatest hope is that someone will be inspired to register as a potential donor and turn up as a match for someone somewhere in the world,’’ he said. “I didn’t get my perfect ending, so I want someone else to have it.’’
Mission Moment:
In Memory Of Firouz
CA United States
male
Lived with AML for 3 months
My father was diagnosed with AML in July at the age of 66. He underwent chemo, achieved remission, but relapsed within 3 weeks. We unsuccessfully tried another treatment, and my father passed away about 3 months after diagnosis. We live our lives expecting tomorrow, without truly appreciating today. If there's any good that came out of my dad's illness, it's that we had a chance to appreciate today as a family, knowing that we may not have tomorrow. My dad left this life knowing how loved he truly was and we were reminded of how much my dad loves us. This was my father's final gift to his family and friends. He is greatly missed!
Monday, November 16, 2009
Winter Season - Week 13
I don't think I've chosen this life; I feel I've been pushed into it. And what sustains me is a sense of my life as a mission. Jane Goodall
Fundraising Tip
Email your monthly update reminding others to donate. This is a great way to keep people up to date with your training and fundraising progress. It's also a great time to update your potential donors on your honored patients status.
Training Tip
Benefits of Massage. The alleviation of tight, sore muscles is just the beginning of what a massage therapist can do for the serious runner. A good sports massage can warm and soften tissues, improve circulation of both blood and lymph fluid—flushing out toxins that cause muscle stiffness and soreness—realign muscle fibers, free muscle adhesions, identify tender areas before they develop into injuries, stretch and relax as well as restore suppleness and normal elasticity to muscles, improve range of motion, speed recovery from a tough workout or race, improve body awareness, and relax the mind and body.
TNT In The News
The Tampa Tribune
www.tbo.com
Circulation – 152,568
Visitors Per Month – 906,728
‘I was Ready to do Whatever it Took’
http://www2.tbo.com/content/2009/nov/07/i-was-ready-to-do-whatever-it-took/life/
By Ani Vidal
NAME: Ani Vidal
AGE: 42
CITY: New Tampa
GOAL: To finish my first triathlon.
‘I Felt I Needed to do Something’
http://www2.tbo.com/content/2009/nov/12/121122/i-felt-i-needed-to-do-something/life-health/
By Cindy Keehn
NAME: Cindy Keehn
AGE: 50
CITY: Clearwater
GOAL: Complete the Women's Running Magazine Inaugural Half Marathon on Nov. 22 in St. Petersburg in honor of those who battle blood cancers, as I celebrate three years in complete remission.
Mission Moment
Mace' has just been diagnosed with secondary AML as a result of her previous cancer treatments. In October 2001, she was diagnosed with Neuroblastoma IV with little hope for survival of 6 months. She had two stem cell transplants in the summer of 2002, after the doctors were unable to remove the tumor in her abdomen. The only symptom she had then was complaints of back pain. Little did we know, she had a tumor in her spine that was removed immediately and aggressive chemotherapy followed. She had multiple infections and fever, and had to be hospitalized. She had many surgeries to repair what chemotherapy and radiation damaged.
She was doing well and was in remission since May 2005. The endocrinologist put her on hormone replacement therapy because the radiation and chemo had caused her to be in primary ovarian failure. She was looking forward to her junior year in high school and getting her license before this summer. The beginning of the summer went well and Mace' was excited about the upcoming school year. When she came home from Camp Kemo in June, she was complaining of an ear infection and female problems. Her pediatrician put her on antibiotics, but the ear infection did not clear up. The pediatrician advised me to call her oncologist about getting some blood work and scans done. While Mace' was on her second dose of antibiotics, the oncologists informed us that three medium sized tumors were found on her liver and Mace' needed a liver biopsy immediately. The needle biopsy was done the end of July, but not helpful, so a week later Mace' had to have a surgery to obtain another biopsy. The findings were benign and two of the tumors were able to be removed. 5 days after being released from the hospital, Mace' was admitted back to the hospital for a staph infection, in the form of big fluid blisters all over her abdomen and around the incision site. Mace' stayed in the hospital for 6 days before the doctors could find out what was going on. She had to celebrate her 16th birthday in the hospital.
The next day she was released to go home, but not before one of the oncologists informed me that her CBCs did not look good and something was going on. Mace' had to return to the oncologist the following Monday for some more blood work. The doctors were not sure if Mace's infection was causing her blood work to be abnormal, or if it was another cancer. Well, the hematologist told me that Mace' could have secondary AML, which is caused when a patient has had a previous cancer and the treatments can cause another cancer to emerge. Mace' had a bone marrow biopsy done on August 25 and the doctors diagnosed her with having AML and said that it was very serious and would difficult to treat because of how aggressive the cancer is, therefore, the treatment would be aggressive as well. Mace' is to be admitted into the cancer center this week to start her chemotherapy treatment and will be in the hospital for treatment and remission. A possible bone marrow transplant may be needed, and her brother, father, and I will be tested for match. My family and I are torn. My community is as well, because Mace' has gone through so much these past 5 years. She told me that this was going to be her year to be a high school student and be like the other teenagers her age. She said that she is lucky and has everything a teenager could want. She received a car for her birthday and was excited about taking driving training in October of this year. She has a wonderful spirit and constant belief in God's healing.
When she was diagnosed with Neuroblastoma, I was shocked and worried, but I left it in God's hands. This time, I am more worried and in disbelief that my daughter has to go through such an ordeal again, when she has overcome so many obstacles; even shocking the doctors. My family and I pray every day for Mace' and her doctors. I know God will be there with her, but I guess I am just hurting for my daughter because I know what is coming ahead, and no parent wants their child to endure such a disease or hurt for anything. Mace' has a brother and he is hurting as well. He and Mace' are very close and I know this is tearing him apart because he doesn't quite understand all of it. I pray for my son as well because the siblings are sometimes forgotten about, unfortunately. All I ask is that anyone who reads this or knows us; pray, pray, pray, and pray for my daughter Mace' and the family. God does answer prayers. He has brought Mace' so far.
Fundraising Tip
Email your monthly update reminding others to donate. This is a great way to keep people up to date with your training and fundraising progress. It's also a great time to update your potential donors on your honored patients status.
Training Tip
Benefits of Massage. The alleviation of tight, sore muscles is just the beginning of what a massage therapist can do for the serious runner. A good sports massage can warm and soften tissues, improve circulation of both blood and lymph fluid—flushing out toxins that cause muscle stiffness and soreness—realign muscle fibers, free muscle adhesions, identify tender areas before they develop into injuries, stretch and relax as well as restore suppleness and normal elasticity to muscles, improve range of motion, speed recovery from a tough workout or race, improve body awareness, and relax the mind and body.
TNT In The News
The Tampa Tribune
www.tbo.com
Circulation – 152,568
Visitors Per Month – 906,728
‘I was Ready to do Whatever it Took’
http://www2.tbo.com/content/2009/nov/07/i-was-ready-to-do-whatever-it-took/life/
By Ani Vidal
NAME: Ani Vidal
AGE: 42
CITY: New Tampa
GOAL: To finish my first triathlon.
‘I Felt I Needed to do Something’
http://www2.tbo.com/content/2009/nov/12/121122/i-felt-i-needed-to-do-something/life-health/
By Cindy Keehn
NAME: Cindy Keehn
AGE: 50
CITY: Clearwater
GOAL: Complete the Women's Running Magazine Inaugural Half Marathon on Nov. 22 in St. Petersburg in honor of those who battle blood cancers, as I celebrate three years in complete remission.
Mission Moment
Mace' has just been diagnosed with secondary AML as a result of her previous cancer treatments. In October 2001, she was diagnosed with Neuroblastoma IV with little hope for survival of 6 months. She had two stem cell transplants in the summer of 2002, after the doctors were unable to remove the tumor in her abdomen. The only symptom she had then was complaints of back pain. Little did we know, she had a tumor in her spine that was removed immediately and aggressive chemotherapy followed. She had multiple infections and fever, and had to be hospitalized. She had many surgeries to repair what chemotherapy and radiation damaged.
She was doing well and was in remission since May 2005. The endocrinologist put her on hormone replacement therapy because the radiation and chemo had caused her to be in primary ovarian failure. She was looking forward to her junior year in high school and getting her license before this summer. The beginning of the summer went well and Mace' was excited about the upcoming school year. When she came home from Camp Kemo in June, she was complaining of an ear infection and female problems. Her pediatrician put her on antibiotics, but the ear infection did not clear up. The pediatrician advised me to call her oncologist about getting some blood work and scans done. While Mace' was on her second dose of antibiotics, the oncologists informed us that three medium sized tumors were found on her liver and Mace' needed a liver biopsy immediately. The needle biopsy was done the end of July, but not helpful, so a week later Mace' had to have a surgery to obtain another biopsy. The findings were benign and two of the tumors were able to be removed. 5 days after being released from the hospital, Mace' was admitted back to the hospital for a staph infection, in the form of big fluid blisters all over her abdomen and around the incision site. Mace' stayed in the hospital for 6 days before the doctors could find out what was going on. She had to celebrate her 16th birthday in the hospital.
The next day she was released to go home, but not before one of the oncologists informed me that her CBCs did not look good and something was going on. Mace' had to return to the oncologist the following Monday for some more blood work. The doctors were not sure if Mace's infection was causing her blood work to be abnormal, or if it was another cancer. Well, the hematologist told me that Mace' could have secondary AML, which is caused when a patient has had a previous cancer and the treatments can cause another cancer to emerge. Mace' had a bone marrow biopsy done on August 25 and the doctors diagnosed her with having AML and said that it was very serious and would difficult to treat because of how aggressive the cancer is, therefore, the treatment would be aggressive as well. Mace' is to be admitted into the cancer center this week to start her chemotherapy treatment and will be in the hospital for treatment and remission. A possible bone marrow transplant may be needed, and her brother, father, and I will be tested for match. My family and I are torn. My community is as well, because Mace' has gone through so much these past 5 years. She told me that this was going to be her year to be a high school student and be like the other teenagers her age. She said that she is lucky and has everything a teenager could want. She received a car for her birthday and was excited about taking driving training in October of this year. She has a wonderful spirit and constant belief in God's healing.
When she was diagnosed with Neuroblastoma, I was shocked and worried, but I left it in God's hands. This time, I am more worried and in disbelief that my daughter has to go through such an ordeal again, when she has overcome so many obstacles; even shocking the doctors. My family and I pray every day for Mace' and her doctors. I know God will be there with her, but I guess I am just hurting for my daughter because I know what is coming ahead, and no parent wants their child to endure such a disease or hurt for anything. Mace' has a brother and he is hurting as well. He and Mace' are very close and I know this is tearing him apart because he doesn't quite understand all of it. I pray for my son as well because the siblings are sometimes forgotten about, unfortunately. All I ask is that anyone who reads this or knows us; pray, pray, pray, and pray for my daughter Mace' and the family. God does answer prayers. He has brought Mace' so far.
Monday, November 2, 2009
Winter Season - Week 11
Hold fast to dreams, for if dreams die, life is a broken winged bird that cannot fly. ~Lanston Hughes
Fundraising Tip
Provide a Service like painting, cleaning, babysitting, shopping, etc. People also like to receive a service at a reduced price especially when they know their funds will go to a good cause.
Training Tip
What to wear. Choose clothing that wicks moisture and fits comfortably. On runs that last a couple of hours, some chafing can usually be expected. Use petroleum jelly or a product like Body Glide on friction-prone areas such as your feet and upper thighs. Women should watch out for chafing around the seams on sports bras. Guys should make sure their nipples are protected -- Band-Aids are a simple solution that can prevent chafing.
Frequently Asked Questions
What is TNT's committment to you?
• Travel, accommodations, and entry fees for event weekend.
• Four or five months of supervised coaching including comprehensive training schedules, and opportunities to train with other Team Members.
• Professional advice on nutrition, injury prevention, and other related topics.
• Fundraising materials, ideas, and strategies.
• Support and encouragement throughout the fundraising and training period.
What is your commitment to TNT?
• Raise the minimum amount of funds designated to aid researchers in their race to find a cure for leukemia and related cancers.
• Train to run, walk, or cycle the marathon, half marathon, century ride or triathlon for which you are registered.
TNT In The News
The Gresham Outlook
www.theoutlookonline.com
Tam Driscoll sets fundraising record for Lymphoma Society
http://www.theoutlookonline.com/news/story.php?story_id=125685722649214800
She did it! Tam Driscoll, who works in Gresham City Hall, is this fall’s top fundraiser in the nation for The Leukemia & Lymphoma Society’s Team in Training. So far, she’s raised more than $58,000, putting her past her goal of $55,000 – the amount needed for Driscoll to work with researchers on one of three studies on non-Hodgkin lymphoma, the same type of cancer that killed her sister, Nancy Driscoll, in June at the age of 56. The amount Driscoll raised is a record for the society’s Oregon chapter, Driscoll said. Second-place fundraising honors went to a California woman who raised $43,000 for The Leukemia & Lymphoma Society. Driscoll’s fundraising efforts were part of her training for the Nike Women’s Marathon on Sunday, Oct. 18. The weekend also included a Friday, Oct. 16, fundraiser party in which Driscoll was the guest speaker.
Mission Moment
Gail Alice Denker
Batavia, IL
United States
female
Living with CML for 7 years
Age: 67
I was 61 years old when diagnosed, newly retired and had just found out my husband and I were going to become grandparents for the first time.
My diagnosis came 5 months before Gleevec was approved by the FDA. Fortunately for me, a trial was beginning at OHSU, conducted by Dr. Brian Druker (who developed the drug) and Dr. Michael Mauro, who became my oncologist at OHSU. I enrolled as patient 001 in the trial to treat newly diagnosed, untreated CML patients.
The trial ended successfully for me. A year later I was in full remission and able to harvest my stem cells. Although I was subsequently diagnosed with breast cancer that same summer (DCIS and LCIS) for which I had bilateral mastectomies, I have remained in full remission for 6 years.
I could not have faced this without the support of my husband, Merle, an orthopedic surgeon who became my personal physician and administered my shots with kindness and patience. My husband and I have been able to enjoy our retirement winters in Southern California, and we are now the proud grandparents of two lovely granddaughters and two darling grandsons.
I feel very blessed to have been diagnosed at the time that Gleevec was being developed, which erased the original prognosis of 3-5 years. I owe my life to Dr. Robert Bayer, my oncologist, who made my diagnosis and encouraged me to enroll in the study, and to Novartis and Drs. Druker and Mauro, as well as the Leukemia and Lymphoma Society, for defeating a once fatal disease.
Fundraising Tip
Provide a Service like painting, cleaning, babysitting, shopping, etc. People also like to receive a service at a reduced price especially when they know their funds will go to a good cause.
Training Tip
What to wear. Choose clothing that wicks moisture and fits comfortably. On runs that last a couple of hours, some chafing can usually be expected. Use petroleum jelly or a product like Body Glide on friction-prone areas such as your feet and upper thighs. Women should watch out for chafing around the seams on sports bras. Guys should make sure their nipples are protected -- Band-Aids are a simple solution that can prevent chafing.
Frequently Asked Questions
What is TNT's committment to you?
• Travel, accommodations, and entry fees for event weekend.
• Four or five months of supervised coaching including comprehensive training schedules, and opportunities to train with other Team Members.
• Professional advice on nutrition, injury prevention, and other related topics.
• Fundraising materials, ideas, and strategies.
• Support and encouragement throughout the fundraising and training period.
What is your commitment to TNT?
• Raise the minimum amount of funds designated to aid researchers in their race to find a cure for leukemia and related cancers.
• Train to run, walk, or cycle the marathon, half marathon, century ride or triathlon for which you are registered.
TNT In The News
The Gresham Outlook
www.theoutlookonline.com
Tam Driscoll sets fundraising record for Lymphoma Society
http://www.theoutlookonline.com/news/story.php?story_id=125685722649214800
She did it! Tam Driscoll, who works in Gresham City Hall, is this fall’s top fundraiser in the nation for The Leukemia & Lymphoma Society’s Team in Training. So far, she’s raised more than $58,000, putting her past her goal of $55,000 – the amount needed for Driscoll to work with researchers on one of three studies on non-Hodgkin lymphoma, the same type of cancer that killed her sister, Nancy Driscoll, in June at the age of 56. The amount Driscoll raised is a record for the society’s Oregon chapter, Driscoll said. Second-place fundraising honors went to a California woman who raised $43,000 for The Leukemia & Lymphoma Society. Driscoll’s fundraising efforts were part of her training for the Nike Women’s Marathon on Sunday, Oct. 18. The weekend also included a Friday, Oct. 16, fundraiser party in which Driscoll was the guest speaker.
Mission Moment
Gail Alice Denker
Batavia, IL
United States
female
Living with CML for 7 years
Age: 67
I was 61 years old when diagnosed, newly retired and had just found out my husband and I were going to become grandparents for the first time.
My diagnosis came 5 months before Gleevec was approved by the FDA. Fortunately for me, a trial was beginning at OHSU, conducted by Dr. Brian Druker (who developed the drug) and Dr. Michael Mauro, who became my oncologist at OHSU. I enrolled as patient 001 in the trial to treat newly diagnosed, untreated CML patients.
The trial ended successfully for me. A year later I was in full remission and able to harvest my stem cells. Although I was subsequently diagnosed with breast cancer that same summer (DCIS and LCIS) for which I had bilateral mastectomies, I have remained in full remission for 6 years.
I could not have faced this without the support of my husband, Merle, an orthopedic surgeon who became my personal physician and administered my shots with kindness and patience. My husband and I have been able to enjoy our retirement winters in Southern California, and we are now the proud grandparents of two lovely granddaughters and two darling grandsons.
I feel very blessed to have been diagnosed at the time that Gleevec was being developed, which erased the original prognosis of 3-5 years. I owe my life to Dr. Robert Bayer, my oncologist, who made my diagnosis and encouraged me to enroll in the study, and to Novartis and Drs. Druker and Mauro, as well as the Leukemia and Lymphoma Society, for defeating a once fatal disease.
Monday, October 26, 2009
Winter Season - Week 10
"The difference between involvement and commitment is like ham and eggs. The chicken is involved; the pig is committed."
~ Martina Navratilova
Fundraising Tip
Be sure to ask around to all of your donors about Matching Funds. Lot's of large corporations offer this benefit to their employees at 50% or sometimes even 100% of the funds donated by the employee. The employee must complete the necessary paperwork.
Frequently Asked Questions
WHAT IS RECOMMITMENT?
It's that wonderful time in the season when we take a look at how well your training is going and how well your fundraising is going and determine whether it is wise to continue on. We really want to cure cancer so we want to inspire all of you to continue on, but we don't want you to pay your fundraising minimum yourselves unless that is your choice. We ask for a credit card number at recommitment because we want you to confirm your commitment to raising the necessary funds to get you to your event and fulfill the Society's mission of 75 cents on every dollar going to research and patient services. After recommitment I will begin booking travel, making sure we have a great hotel lined up, registering everyone for their event, and verifying our parties are secured. Please be sure to fill out the paperwork thoroughly so we don't have a lot of changes and fees. Don't forget, you have 30 days after your event to continue to raise funds, so even if I do have to charge your card, you'll have time to make up the difference for a refund. Recommitment Paperwork will be mailed Monday October 26th!!!
Team In Training In The News
Endurance Sports Examiner
http://www.examiner.com/
Visitors Per Month – 1,766,717
2009 Nike Women’s Marathon Results: California Runner Wins
http://www.examiner.com/x-2490-Endurance-Sports-Examiner~y2009m10d18-2009-Nike-womens-Marathon-results-California-runner-wins
By Roman Mica
Over 20,000 women took to the streets of San Francisco today to run the 2009 Nike women's marathon and to raise $14 million for the Leukemia Lymphoma Society. At the end of the race it was Californian Caitlin Smith of Oakland who finished the full marathon first in a time of 2:58:52. At the half marathon distance it was Carrie Dimoff of Portland, Ore. who won with a time of 1:25:26. "I loved the race," said Barb Mica who completed the half marathon. "It was very hilly but scenic. The runners are all so polite compared to coed triathlon it felt like a bunch of nice girls," she added. At the end of the race Firefighters handed out small wrapped Tiffany and Co. boxes to the finishers that held a silver necklace with the inscription "Run Like a Girl."
http://www.examiner.com/
Visitors Per Month – 1,766,717
2009 Nike Women’s Marathon Results: California Runner Wins
http://www.examiner.com/x-2490-Endurance-Sports-Examiner~y2009m10d18-2009-Nike-womens-Marathon-results-California-runner-wins
By Roman Mica
Over 20,000 women took to the streets of San Francisco today to run the 2009 Nike women's marathon and to raise $14 million for the Leukemia Lymphoma Society. At the end of the race it was Californian Caitlin Smith of Oakland who finished the full marathon first in a time of 2:58:52. At the half marathon distance it was Carrie Dimoff of Portland, Ore. who won with a time of 1:25:26. "I loved the race," said Barb Mica who completed the half marathon. "It was very hilly but scenic. The runners are all so polite compared to coed triathlon it felt like a bunch of nice girls," she added. At the end of the race Firefighters handed out small wrapped Tiffany and Co. boxes to the finishers that held a silver necklace with the inscription "Run Like a Girl."
Mission Moment
Nate Robert Wilkos
Middletown, CT United States
Living with ALL for 1 year, 10 months
Age: 5
Everything was going great. My family was expecting a third child in March. She came on Feb 27, 06 - with some complications. I almost lost my mom and sister, but they both pulled through. Four weeks later, my parents noticed a lump near my ear, the doctor said it was a swollen gland and gave me some antibiotics. Then, another lump grew under my chin. The doctor said to go and see my ENT. The ENT said I had Lyme disease or Mononucleosis, and not to worry. They took some blood and it all came back fine. So the ENT did a biopsy on the lump and it came back as Precursor B-cell Lymphoma. My parent's took me to the oncologist the next day and they did a bone marrow biopsy. I had 30% blast cells and was told that I had pre-B leukemia (ALL). My parent’s world fell apart, but we all made it through the rough part of chemo and I am now in the maintenance part of chemo and doing fine. My hair is even starting to come back!
Monday, October 12, 2009
Winter Season - Week 8
Men do less than they ought, unless they do all they can.
~Thomas Carlyle
Fundraising Tip:
Make copies of your letter and keep it in your purse or car. Make sure you give one to people you run into on the street. You never know!
Frequently Asked Questions:
WHAT IS RECOMMITMENT?
It's that wonderful time in the season when we take a look at how well your training is going and how well your fundraising is going and determine whether it is wise to continue on. We really want to cure cancer so we want to inspire all of you to continue on, but we don't want you to pay your fundraising minimum yourselves unless that is your choice. We ask for a credit card number at recommitment because we want you to confirm your commitment to raising the necessary funds to get you to your event and fulfill the Society's mission of 75 cents on every dollar going to research and patient services. After recommitment I will begin booking travel, making sure we have a great hotel lined up, registering everyone for their event, and verifying our parties are secured. Please be sure to fill out the paperwork thoroughly so we don't have a lot of changes and fees. Don't forget, you have 30 days after your event to continue to raise funds, so even if I do have to charge your card, you'll have time to make up the difference for a refund. Recommitment Paperwork will be mailed out Monday October 26th!!!
Mission Moment:
In Memory Of William Fischer
WI United States
male
Lived with Lymphoma T-Cell for 1 year, 4 months
My father died in 1994 after a fast, but courageous battle with T-Cell Lymphoma. I miss him so very much, and wish every day that he could be here. My biggest sorrow is that my daughter and son will never have a chance to know their grandfather.
I pray every day that new treatments will be developed so that other fathers, mothers, husbands, wives, sons, and daughters can live longer, fuller lives.
~Thomas Carlyle
Fundraising Tip:
Make copies of your letter and keep it in your purse or car. Make sure you give one to people you run into on the street. You never know!
Frequently Asked Questions:
WHAT IS RECOMMITMENT?
It's that wonderful time in the season when we take a look at how well your training is going and how well your fundraising is going and determine whether it is wise to continue on. We really want to cure cancer so we want to inspire all of you to continue on, but we don't want you to pay your fundraising minimum yourselves unless that is your choice. We ask for a credit card number at recommitment because we want you to confirm your commitment to raising the necessary funds to get you to your event and fulfill the Society's mission of 75 cents on every dollar going to research and patient services. After recommitment I will begin booking travel, making sure we have a great hotel lined up, registering everyone for their event, and verifying our parties are secured. Please be sure to fill out the paperwork thoroughly so we don't have a lot of changes and fees. Don't forget, you have 30 days after your event to continue to raise funds, so even if I do have to charge your card, you'll have time to make up the difference for a refund. Recommitment Paperwork will be mailed out Monday October 26th!!!
Mission Moment:
In Memory Of William Fischer
WI United States
male
Lived with Lymphoma T-Cell for 1 year, 4 months
My father died in 1994 after a fast, but courageous battle with T-Cell Lymphoma. I miss him so very much, and wish every day that he could be here. My biggest sorrow is that my daughter and son will never have a chance to know their grandfather.
I pray every day that new treatments will be developed so that other fathers, mothers, husbands, wives, sons, and daughters can live longer, fuller lives.
Tuesday, October 6, 2009
Winter Season - Week 7
"Why, sometimes I've believed as many as six impossible things before breakfast."
~Lewis Carroll
Fundraising Tip
Send a Postcard Reminder to those who haven't donated yet. Be sure to update your list at this time as you may have realized someone you forgot earlier or you may have recently met someone new.
Frequently Asked Questions
WHAT ARE SOME NEW APPROACHES TO TREATMENT?
• Monoclonal Antibodies- The treatment fuses radioactive iodine to a monoclonal antibody. These antibodies are used as guided missiles to target and destroy malignant cells in leukemia patients. Since the antibody attaches to specific sites on the surface of the cancerous white blood cells but not to normal tissues, it focuses the radiation effect on the leukemia cells.
• Blood Cell Growth Factors-These are naturally occurring body proteins that help regulate the number of blood cells in circulation. These factors can be genetically engineered into drugs and used to treat acute leukemia, lymphoma and myeloma.
• Umbilical Cord Blood- Transplant specialists use blood from the umbilical cord and placenta of newborns to replace the diseased marrow of children with leukemia who no longer responded to conventional methods of treatment. Umbilical cord blood is an excellent source of stem cells (also present in marrow) that can reconstitute a healthy blood cell population. LSA researchers were among the first in the nation to perform cord blood transplants from unrelated donors.
• New Drugs-Leukemia & Lymphoma Society researchers are evaluating drugs in development and novel drug combinations as the foundation for more promising new treatments. The use of purine nucleotides such as 2-chlorodeoxyadenosine (2-CdA), is under investigation for patients with chronic lymphocytic leukemia and acute myelogenous leukemia.
Mission Moment
In Memory Of Luz E. Burgos
New York, NY
United States
female
Lived with Leukemia - rare type for 2 months
My mother was diagnosed with a rare form of leukemia on Mother's Day of 2006, at the age of 62. Unfortunately, she died two months later. She chose to spend the rest of her days at Zicklin Hospice in NYC. They made her last days absolutely wonderful. Until the day she passed she had a smile on her face because of all the support she received. Please, please, if your loved one chooses this path, please support them and enjoy the time they have left. My mother was an amazing woman full of life, love and happiness. She lived and died that way.
Monday, September 21, 2009
Winter Season - Week 5
"Whether you think you can or think you can't - you are right."
~ Henry Ford
Fundraising Tips
Email your monthly update reminding others to donate. This is a great way to keep people up to date with your training and fundraising progress. It's also a great time to update your potential donors on your honored patients status.
Training Tips - Safety
1. When walking, running, or cycling near traffic, always face traffic so that you can see and be seen.
2. Wear a reflective vest or reflective strips on your clothing, especially at dusk or dawn. On dark days, you are more visible in bright clothes. Another option is to purchase blinking reflective lights that can be attached to belts or jackets. These are ideal for night time or early morning use.
3. Whenever possible, try to walk, run or ride with a partner. Or have some of your friends walk, run or ride with you in shifts if they can’t complete the entire distance.
4. Stay away from isolated areas. Find places that are well-let and patrolled.
5. Leave your jewelry at home.
6. Good things to carry with you:
A whistle
Identification
Money for a phone call or a beverage
Dog spray or protection spray
7. We do not endorse wearing a walkman because of the safety issues they raise. We realize many people want to use them. If you must, make sure the volume is not so high that you can not hear traffic or anyone that may be approaching you.
8. We do not endorse training with dogs or small children in strollers because of the safety issues that they raise.
9. Always exercise caution and be on the lookout for any type of danger.
Frequently Asked Questions
WHAT IS MYELOMA?
Myeloma is a cancer of the plasma cells, a type of white blood cell found in many tissues of the body, but mainly in the bone marrow. In myeloma, a plasma cell becomes malignant. It grows continuously—especially in the marrow—destroying normal bone tissue, causing pain, and crowding out normal blood cell production.Malignant plasma cells produce an abnormal protein called monoclonal immunoglobulin. Immunoglobulins (or antibodies) are an important part of the body’s natural defense against infection since they recognize microbes that invade the body and permit them to be removed and destroyed. The onset of myeloma interferes with normal production of antibodies and makes myeloma patients susceptible to infections.
Mission Moment
"My Life with Cancer - My Life Has Change"
• I have Cancer, (Acute Lymphoblastic Leukemia); it has been a big shock for family and friends to find out.
• I have Cancer, (Acute Lymphoblastic Leukemia); it has been a big shock for family and friends to find out.
• I turned bald at 15, on New Years Day I turned 16 and it turns out that I still have cancer. I look different on the outside but I’m the same person. I don’t have the choice in many things, but I could choose to make the best of the situation. CANCER will not conquer me.
• I try to make myself happy. Even on "bad" days, between treatments, it always makes me happy to take a week off from treatment.
• I have choices and I can still make some decisions. I chose whether to be asleep or awake for some procedures, and I chose not to eat hospital food.
• I am very independent and I cook whenever I can, but some days I can’t work up the energy to do it.
• I hate different smells. To help make my room more enjoyable I spray the room or use candles of smells I like.
• I try to make the best out of everything. But there are days that I want to stop with the treatment.
• I am determined to fight Cancer, to live my life to the fullest. I see things in a different way; I learned that the unexpected gift of cancer is a way to appreciate life more. I have strength and tolerance to pain that I did not know I had.
• I can say that cancer has made me different. It can make me feel very alone sometimes. When it comes down to it; I’m not alone - I have my family & friends!!! I am very surprised to have such great support from all the people that have made a difference in my experience with cancer.
• I want to fight for my life with cancer and want to live. Everyone dies, but not everyone truly lives.
• I have not been able to return to school and homebound school service has not been approved; the relationship with the school has not been positive.
• I have a life with cancer and I have many family and friends who are caring, concerned and always fun to be with. Fortunately, they can not have been more supportive. They will do anything they can to help in any way: phone calls, visits, gifts, prayers, fundraisers, donations and most of all, words of encouragement and love. These are the things that keep me going. Some days are bad, some are good, and some are great. If I look depressed, someone will always be there with a smile and a big bear hug.
• I can say as awful as cancer can be, it has brought my family and friends together, and we all have grown closer because of it. I guess you could say that I put my family and friends to “the test” by having them deal with cancer right along with me. The result: nothing will ever change the relationship I have with my family and friends. I have the best family & friends anyone could ever have!
• I try to make myself happy. Even on "bad" days, between treatments, it always makes me happy to take a week off from treatment.
• I have choices and I can still make some decisions. I chose whether to be asleep or awake for some procedures, and I chose not to eat hospital food.
• I am very independent and I cook whenever I can, but some days I can’t work up the energy to do it.
• I hate different smells. To help make my room more enjoyable I spray the room or use candles of smells I like.
• I try to make the best out of everything. But there are days that I want to stop with the treatment.
• I am determined to fight Cancer, to live my life to the fullest. I see things in a different way; I learned that the unexpected gift of cancer is a way to appreciate life more. I have strength and tolerance to pain that I did not know I had.
• I can say that cancer has made me different. It can make me feel very alone sometimes. When it comes down to it; I’m not alone - I have my family & friends!!! I am very surprised to have such great support from all the people that have made a difference in my experience with cancer.
• I want to fight for my life with cancer and want to live. Everyone dies, but not everyone truly lives.
• I have not been able to return to school and homebound school service has not been approved; the relationship with the school has not been positive.
• I have a life with cancer and I have many family and friends who are caring, concerned and always fun to be with. Fortunately, they can not have been more supportive. They will do anything they can to help in any way: phone calls, visits, gifts, prayers, fundraisers, donations and most of all, words of encouragement and love. These are the things that keep me going. Some days are bad, some are good, and some are great. If I look depressed, someone will always be there with a smile and a big bear hug.
• I can say as awful as cancer can be, it has brought my family and friends together, and we all have grown closer because of it. I guess you could say that I put my family and friends to “the test” by having them deal with cancer right along with me. The result: nothing will ever change the relationship I have with my family and friends. I have the best family & friends anyone could ever have!
Monday, September 14, 2009
Winter Season - Week 4
To find what you seek in the road of life, the best proverb of all is that which says: "leave no stone unturned." ~Edward Bulwer Lytton
Fundraising Tip
Setup your phone message, email signature, MySpace, Facebook, Twitter etc. and tell everyone you know on a daily basis that you are raising funds for LLS. Don't forget to provide your fundraising website link for quick and simple donations.
Training Tip
Hydration: To stay hydrated, you'll need to drink every 15 to 20 minutes. A sports-drink mixture diluted with additional water will keep you hydrated while providing your body with the carbohydrates it needs for longer runs. You can simply carry a water bottle, or use a water bottle fanny pack. Another option is the Fuel Belt, which securely holds 5-ounce flasks around your waist.
Food: For runs lasting more than an hour, you should ingest about 40 to 60 grams of carbohydrates per hour. Energy gels digest quickly, and they're easier to consume than energy bars on the run.
Frequently Asked Questions
WHAT IS LYMPHOMA?
A general term for a group of cancers that originate in the lymphatic system, which includes hundreds of bean-size lymph nodes, present throughout the body, and the spleen and thymus.Result when a lymphocyte (a type of white blood cell) undergoes a malignant change and begins to multiply, eventually crowding out healthy cells and creating tumors, which enlarge lymph nodes.
Mission Moment
Karen Jennings
WI United States
Living with Non-Hodgkin's Lymphoma for 8 years
Age: 39
Towards the end of January of 2000, I was experiencing pain in my spleen area and had developed a swollen lymph node on the left side of my neck. I went to see my doctor and he became concerned right away, and set me up for a CT scan and an appointment with an Ear, Nose & Throat specialist. The CT showed nothing wrong with my spleen and the ENT ordered a biopsy of the lymph node. The biopsy came back Non-Hodgkin’s Lymphoma, low-grade, follicular B-cell, small cleaved. Then I needed a body CT scan to see if it was anywhere else. They found it in my groin too, so they said was Stage 3.
We did the "Wait and Watch" method and things seemed to stay in control. My CT scans went from every 3 months, to 6 months, to every year, until April 2005. I developed a lump in front of my left ear. After another biopsy it showed the lymphoma was in my parotid gland. So I started 20 treatments of radiation. It was a bad experience, and a memorable one at that. I lost my hair from my ear line down, I lost my taste buds, and my throat was so sore it was hard to eat or drink anything. I ended up in the hospital for a few days. I finally got through it with the help and support of my wonderful, caring husband and 2 daughters.
The results of my treatments left me with 1 parotid gland, which I have to be on medicine to help stimulate my saliva. I got most of my taste buds back, but my likes and dislikes of food has changed. Otherwise, I am doing fine. My CT scans are scheduled for 6 months, but I'm always looking behind my back and the illness never leaves my mind. In October 2006 the results of my CT showed that I had a 3 inch cluster of lymph nodes in my pelvis that needed treatment. We did a PET scan and it showed that the cancer was throughout my body now. The biopsy in the pelvis showed that it hadn't become aggressive, and a bone marrow biopsy showed that it's in 5% on one side, and 40% on the other. I am undergoing chemotherapy now (Rituxan and CVP), and so far everything is going well (keeping our fingers crossed).
Fundraising Tip
Setup your phone message, email signature, MySpace, Facebook, Twitter etc. and tell everyone you know on a daily basis that you are raising funds for LLS. Don't forget to provide your fundraising website link for quick and simple donations.
Training Tip
Hydration: To stay hydrated, you'll need to drink every 15 to 20 minutes. A sports-drink mixture diluted with additional water will keep you hydrated while providing your body with the carbohydrates it needs for longer runs. You can simply carry a water bottle, or use a water bottle fanny pack. Another option is the Fuel Belt, which securely holds 5-ounce flasks around your waist.
Food: For runs lasting more than an hour, you should ingest about 40 to 60 grams of carbohydrates per hour. Energy gels digest quickly, and they're easier to consume than energy bars on the run.
Frequently Asked Questions
WHAT IS LYMPHOMA?
A general term for a group of cancers that originate in the lymphatic system, which includes hundreds of bean-size lymph nodes, present throughout the body, and the spleen and thymus.Result when a lymphocyte (a type of white blood cell) undergoes a malignant change and begins to multiply, eventually crowding out healthy cells and creating tumors, which enlarge lymph nodes.
Mission Moment
Karen Jennings
WI United States
Living with Non-Hodgkin's Lymphoma for 8 years
Age: 39
Towards the end of January of 2000, I was experiencing pain in my spleen area and had developed a swollen lymph node on the left side of my neck. I went to see my doctor and he became concerned right away, and set me up for a CT scan and an appointment with an Ear, Nose & Throat specialist. The CT showed nothing wrong with my spleen and the ENT ordered a biopsy of the lymph node. The biopsy came back Non-Hodgkin’s Lymphoma, low-grade, follicular B-cell, small cleaved. Then I needed a body CT scan to see if it was anywhere else. They found it in my groin too, so they said was Stage 3.
We did the "Wait and Watch" method and things seemed to stay in control. My CT scans went from every 3 months, to 6 months, to every year, until April 2005. I developed a lump in front of my left ear. After another biopsy it showed the lymphoma was in my parotid gland. So I started 20 treatments of radiation. It was a bad experience, and a memorable one at that. I lost my hair from my ear line down, I lost my taste buds, and my throat was so sore it was hard to eat or drink anything. I ended up in the hospital for a few days. I finally got through it with the help and support of my wonderful, caring husband and 2 daughters.
The results of my treatments left me with 1 parotid gland, which I have to be on medicine to help stimulate my saliva. I got most of my taste buds back, but my likes and dislikes of food has changed. Otherwise, I am doing fine. My CT scans are scheduled for 6 months, but I'm always looking behind my back and the illness never leaves my mind. In October 2006 the results of my CT showed that I had a 3 inch cluster of lymph nodes in my pelvis that needed treatment. We did a PET scan and it showed that the cancer was throughout my body now. The biopsy in the pelvis showed that it hadn't become aggressive, and a bone marrow biopsy showed that it's in 5% on one side, and 40% on the other. I am undergoing chemotherapy now (Rituxan and CVP), and so far everything is going well (keeping our fingers crossed).
Tuesday, September 8, 2009
Winter Season - Week 3
The best way to prepare for life is to begin to live. ~Elbert Hubbard
Training Tip
Stretching
Send 100 letters or more to people who know you or your family well. It is extremely important that you use your parents address book for letters as these are people who care about you, but you may not have email addresses for.
Frequently Asked Questions
WHAT IS LEUKEMIA?
Leukemia is a cancer of the blood-forming cells. It originates in a primitive blood-forming cell in the bone marrow. Leukemia occurs when immature blood cells accumulate in an uncontrolled manner in the marrow. The marrow often can no longer produce enough healthy red and white blood cells and platelets. The loss of red cells leads to anemia. The lack of functional white cells impairs the body’s ability to fight infections. A shortage of platelets result in bruising and easy bleeding.The major forms of leukemia are divided into four categories: acute and chronic myelogenous and acute and chronic lymphocytic. Myelogenous or lymphocytic denotes the cell type involved. Acute leukemia is a rapidly progressing disease that affects mostly immature cells. Chronic leukemia progresses slowly and involves greater numbers of more mature cells.
Mission Moment
Son Ngoc Dang
San Diego, CA
Lived with AML for 3 years, 7 months
We just had our second daughter (our first was 2) when Son Dang started to have symptoms of leukemia. A month later, after many tests, his was diagnosed with acute myelogenous leukemia (AML) at the age of 34. That night, we laid in bed holding hands staring blankly at the ceiling with tears streaming down our cheeks. We were both watching our dreams of a “normal” life disappear. We did not know what lay ahead of us, but inside we shook in fear of this unknown disease that adopted itself into our family. Son was lucky to have his sister’s blood cells match his for a bone marrow transplant. He was thankful that he had this choice to do the transplant, but we did not realize how much our lives will change afterwards. For the next 3 ½ years, Son had to deal with Graft vs. Host Disease (GVHD); effects of the transplant. Life for me, his 2 girls (5 and 3) and his mother (who lived with us to help us out) was not easy. Every day I watched him fight for his life. Then, on Thanksgiving Day, 2002 I got a phone call from his doctor that he suspected stomach cancer. A few days later it was confirmed. On January 22 he was admitted to have part of his stomach removed. He never came out of the hospital. A month later he passed away leaving me 5 months pregnant. Miracles do happen; just in unexpected ways. For all the families who have to go through cancer with a loved one, I reach out to you in prayer for strength and support. And I pray and hope for many other cancer victims out there that your journey to fight for your life will be surrounded with love and happiness as it was for Son Dang.
Training Tip
Stretching
Your Team In Training coach will give you a complete lesson on muscle groups along with a pre-and post-workout stretching routine that you should begin to use every time. It will help prevent potential injuries and keep you feeling much better.
Basic Stretching Information:
Never run, walk or cycle without first stretching properly. Not stretching properly is one of the surest ways to cause injury.
Always stretch slowly and without bouncing; ease your body into the stretching.
Hold the stretch until it gradually becomes more comfortable.
Get to know your specific muscle groups and pay close attention to problematic ones when stretching.
Stretching increases flexibility and makes you a more efficient athlete.
Stretching prevents injuries. Flexible muscles perform better.
Stretching encourages recovery. Stretching after a long workout aids muscle recovery faster.
While stretching, breathe slowly and naturally. Breathing deeply helps you relax.
Top 3 Stretches:
Downward Facing Dog: stretches tight calves, hamstrings, ankles, back and arms
Quadriceps stretch: stretches tight quads-a very large, important muscle group.
Hip stretch I & II: opens hips and keeps joints flexible.
Send 100 letters or more to people who know you or your family well. It is extremely important that you use your parents address book for letters as these are people who care about you, but you may not have email addresses for.
Frequently Asked Questions
WHAT IS LEUKEMIA?
Leukemia is a cancer of the blood-forming cells. It originates in a primitive blood-forming cell in the bone marrow. Leukemia occurs when immature blood cells accumulate in an uncontrolled manner in the marrow. The marrow often can no longer produce enough healthy red and white blood cells and platelets. The loss of red cells leads to anemia. The lack of functional white cells impairs the body’s ability to fight infections. A shortage of platelets result in bruising and easy bleeding.The major forms of leukemia are divided into four categories: acute and chronic myelogenous and acute and chronic lymphocytic. Myelogenous or lymphocytic denotes the cell type involved. Acute leukemia is a rapidly progressing disease that affects mostly immature cells. Chronic leukemia progresses slowly and involves greater numbers of more mature cells.
Mission Moment
Son Ngoc Dang
San Diego, CA
Lived with AML for 3 years, 7 months
We just had our second daughter (our first was 2) when Son Dang started to have symptoms of leukemia. A month later, after many tests, his was diagnosed with acute myelogenous leukemia (AML) at the age of 34. That night, we laid in bed holding hands staring blankly at the ceiling with tears streaming down our cheeks. We were both watching our dreams of a “normal” life disappear. We did not know what lay ahead of us, but inside we shook in fear of this unknown disease that adopted itself into our family. Son was lucky to have his sister’s blood cells match his for a bone marrow transplant. He was thankful that he had this choice to do the transplant, but we did not realize how much our lives will change afterwards. For the next 3 ½ years, Son had to deal with Graft vs. Host Disease (GVHD); effects of the transplant. Life for me, his 2 girls (5 and 3) and his mother (who lived with us to help us out) was not easy. Every day I watched him fight for his life. Then, on Thanksgiving Day, 2002 I got a phone call from his doctor that he suspected stomach cancer. A few days later it was confirmed. On January 22 he was admitted to have part of his stomach removed. He never came out of the hospital. A month later he passed away leaving me 5 months pregnant. Miracles do happen; just in unexpected ways. For all the families who have to go through cancer with a loved one, I reach out to you in prayer for strength and support. And I pray and hope for many other cancer victims out there that your journey to fight for your life will be surrounded with love and happiness as it was for Son Dang.
Monday, August 31, 2009
Winter Season - Week 2
State of Mind
If you think you are beaten … you are.
If you think that you dare not … you don't.
If you think that you'd like to win
But feel you can't, it's almost a cinch that you won't
For out in this world you'll find
Success begins with a fellow's will -It's all in the State of Mind.
Yes, many a race is lost before ever a step is run,
And many a coward fails before his work's begun.
Think big, and your deeds will rise;
Think small, and you'll fall behind.
Think that you can, and you will -For it's all in the State of Mind.
If you think you're outclassed … you are.
You've got to think high to rise.
You've got to know that you can before you ever win a prize
Life's battles don't always go to the bigger or the stronger man,
But sooner or later that fellow who wins
Is the fellow who thinks he can.
Fundraising Tip
Write Your Fundraising Letter including photos, persoanlized, text, names of honored patients and why you are led to make a difference. Send a shortened version of your letter in an Email to everyone you have email addresses for. Be sure to provide your fundriasing website link.. We still have plenty of information meetings coming up so feel free to attend another meeting and invite your friends, family, and co-workers along. You will receive a $100 fundraising credit for every person who completes their fundraising and event!!!
Frequently Asked Questions
WHERE DOES THE MONEY GO?
As you know, the money we raise helps blood cancer patients and their families by funding research to find cures and better therapies, and provide information and support so that they have the best possible outcomes throughout their cancer experience. However, if donors need a more specific response to: "What does a $25, $50 or $100 donation buy?" here is their answer:
Mission Moment
Dawn
Tennessee
Living with Non-Hodgkin's Lymphoma for 1 year, 4 months
Age: 38
Wow . . . How fast your life can change before your eyes. I am 37, a wife, sister, daughter, and mother to two incredible sons. My story starts with a pain in my back and chest, a pain so bad that my hubby took me to the ER. I was first diagnosed with pneumonia. After a few days of bed rest and a round of antibiotics, I left for Romania for my first Mission Trip. When I returned, I got worse even after a couple more weeks of antibiotics and bed rest. I finally get a CT-scan and we are told I have Diffused Large B-Cell Non-Hodgkin Lymphoma. My first chemo was set for 4 days later and it has been less than a week and my head is swimming.
I believe that God will get me through this. I believe there is so much more to experience and see...I want to Live....I will be praying for you...God Bless!
If you think you are beaten … you are.
If you think that you dare not … you don't.
If you think that you'd like to win
But feel you can't, it's almost a cinch that you won't
For out in this world you'll find
Success begins with a fellow's will -It's all in the State of Mind.
Yes, many a race is lost before ever a step is run,
And many a coward fails before his work's begun.
Think big, and your deeds will rise;
Think small, and you'll fall behind.
Think that you can, and you will -For it's all in the State of Mind.
If you think you're outclassed … you are.
You've got to think high to rise.
You've got to know that you can before you ever win a prize
Life's battles don't always go to the bigger or the stronger man,
But sooner or later that fellow who wins
Is the fellow who thinks he can.
Fundraising Tip
Write Your Fundraising Letter including photos, persoanlized, text, names of honored patients and why you are led to make a difference. Send a shortened version of your letter in an Email to everyone you have email addresses for. Be sure to provide your fundriasing website link.. We still have plenty of information meetings coming up so feel free to attend another meeting and invite your friends, family, and co-workers along. You will receive a $100 fundraising credit for every person who completes their fundraising and event!!!
Frequently Asked Questions
WHERE DOES THE MONEY GO?
As you know, the money we raise helps blood cancer patients and their families by funding research to find cures and better therapies, and provide information and support so that they have the best possible outcomes throughout their cancer experience. However, if donors need a more specific response to: "What does a $25, $50 or $100 donation buy?" here is their answer:
- A donation of $25 provides patients and their loved ones with FREE booklets that contain up-to-date information on their disease and help them make informed decisions about their treatment options.
- A donation of $50 makes possible a Family Support group with a trained facilitator where comfort can be found and experiences can be shared among patients and family members.
- A donation of $100 helps supply laboratory researchers with supplies and materials critical to carrying out their search for cures.
- A donation of $1,000 makes possible one- on-one conversations with health care specialists who provide patients with information about their disease, treatment options, and helps prepare them with questions for their health care team.
Mission Moment
Dawn
Tennessee
Living with Non-Hodgkin's Lymphoma for 1 year, 4 months
Age: 38
Wow . . . How fast your life can change before your eyes. I am 37, a wife, sister, daughter, and mother to two incredible sons. My story starts with a pain in my back and chest, a pain so bad that my hubby took me to the ER. I was first diagnosed with pneumonia. After a few days of bed rest and a round of antibiotics, I left for Romania for my first Mission Trip. When I returned, I got worse even after a couple more weeks of antibiotics and bed rest. I finally get a CT-scan and we are told I have Diffused Large B-Cell Non-Hodgkin Lymphoma. My first chemo was set for 4 days later and it has been less than a week and my head is swimming.
I believe that God will get me through this. I believe there is so much more to experience and see...I want to Live....I will be praying for you...God Bless!
Monday, August 24, 2009
Winter Season - Week 1
You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do.
--Eleanor Roosevelt
Fundraising Tip
Set up your fundraising website by personalizing the text, adding a photo, and setting a fundraising goal. The best websites include photos of honored patients.
Frequently Asked Questions
WHAT DOES THE LLS DO?
There are 68 chapters of the Society located across the United States and Canada. The Society supports a variety of programs: research, patient services, advocacy, community service and education.
Mission Moment
Peyton Mayhew
Brandon, FL
Living with ALL for 1 year, 7 months
Age: 4
Peyton is 4 years old. Her story is common to her disease and devastating to our family. On July 13, 2006 I had taken her to the pediatrician because she had been running a low-grade fever and complaining that she hurt. We thought she had an ear infection or maybe strep throat. How shocking to find yourself in an oncologist's office hearing news that will change your entire life. Peyton receives her treatment at All Children’s Hospital in St. Petersburg and Tampa, we have the most wonderful team of doctors and nurses who support, help and educate us each step of the way.
Our family is blessed with Peyton's older brother and sister Nathaniel and Rachael, who have been helpful, patient and understanding throughout the beginning stages of her treatment. We have had the most amazing outpouring of love and support from our friends, family, church, school, and community. Prayers have been prayed, meals delivered, presents brought to the house, cards mailed, our website visited for updates on how she's feeling and just calls to see if we need to talk.
It's been a growth time for us as a family to come together and be strong for each other- to be patient, to give, love and support each other. It's heartbreaking to watch your child's pain, to hear their cries, and to see the physical manifestations of the disease in their once perfect body. You feel like you can do nothing for them, you have no control, and there's a sense of complete helplessness. Yet you comfort, you console, you cheer, you make them smile and laugh, you make favorite foods and read the same story over and over. You hold and love through tears in the night, and let them know you're there with them through each treatment and will never leave them.
--Anissa Mayhew, mother of Peyton Mayhew www.hope4peyton.org
--Eleanor Roosevelt
Fundraising Tip
Set up your fundraising website by personalizing the text, adding a photo, and setting a fundraising goal. The best websites include photos of honored patients.
Frequently Asked Questions
WHAT DOES THE LLS DO?
There are 68 chapters of the Society located across the United States and Canada. The Society supports a variety of programs: research, patient services, advocacy, community service and education.
- Research Funding—supports basic and clinical grants to find causes, cures and preventive methods.
- Patient Services—provides financial aid and peer support groups.
- Advocacy—supports access to healthcare and increased research funding.
- Community Service—referrals to local resources and sponsorship of marrow donor drives.
- Education—free educational materials and professional medical symposia. Free literature is available through the toll-free Public Information Line 1-800-955-4572 and through our Web Site http://www.lls.org.
Mission Moment
Peyton Mayhew
Brandon, FL
Living with ALL for 1 year, 7 months
Age: 4
Peyton is 4 years old. Her story is common to her disease and devastating to our family. On July 13, 2006 I had taken her to the pediatrician because she had been running a low-grade fever and complaining that she hurt. We thought she had an ear infection or maybe strep throat. How shocking to find yourself in an oncologist's office hearing news that will change your entire life. Peyton receives her treatment at All Children’s Hospital in St. Petersburg and Tampa, we have the most wonderful team of doctors and nurses who support, help and educate us each step of the way.
Our family is blessed with Peyton's older brother and sister Nathaniel and Rachael, who have been helpful, patient and understanding throughout the beginning stages of her treatment. We have had the most amazing outpouring of love and support from our friends, family, church, school, and community. Prayers have been prayed, meals delivered, presents brought to the house, cards mailed, our website visited for updates on how she's feeling and just calls to see if we need to talk.
It's been a growth time for us as a family to come together and be strong for each other- to be patient, to give, love and support each other. It's heartbreaking to watch your child's pain, to hear their cries, and to see the physical manifestations of the disease in their once perfect body. You feel like you can do nothing for them, you have no control, and there's a sense of complete helplessness. Yet you comfort, you console, you cheer, you make them smile and laugh, you make favorite foods and read the same story over and over. You hold and love through tears in the night, and let them know you're there with them through each treatment and will never leave them.
--Anissa Mayhew, mother of Peyton Mayhew www.hope4peyton.org
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